A commendation on a very rough day.
As many of you may know, Michael was laid off last month (right before his birthday). It’s put a decided crimp on our holiday cheer, but we’re trying to focus on the positive. He’s got some good leads, but as this is a perilously difficult time to get a job we’re hunkering down and preparing for the months to come.
When it comes to Liam’s school though, we’ll do everything we can keep him there as long as possible. In spite of his very good week the last time we posted, he’s had a tough go. Not without moments of triumph, but certainly harder than usual. Unlike normative children, he struggles to put into words what’s bothering him — we know that Michael’s job loss weighs heavily on him, and that he understands his school is costly.Continue reading
My son is fabulous.
Liam gesticulates. That’s a big word for “talks with his hands” — and it’s something he got from me. He makes flourishes as he talks with his fingers, draws circles in the air, gestures to things unseen, and emphasizes just about everything he can. He’s knocked his knuckles on doorjambs, knocked over glasses, and even a few times managed to fall out of a chair telling a good story. When he’s excited, his whole body’s excited.
Over the last month, we’ve heard lots of stories from Liam. Of kickball adventures. Of geckos. Of forts in the trees. Of new friends and a nemesis or two. Of funny teachers. Of good times, and bad times. And lots of flourishes.Continue reading
One of the things people often ask me is whether or not I think autism is on the rise. Or if I have any ideas as to how Liam became autistic. Was it the traumatic birth? Was it the Zoloft? Are there other people with autism in the family?
Sometimes I feel like Liam takes up at least 90% of my brain function. The rest is reserved for the rudimentary necessities of life — the lizard brain, as it were — and just enough to get by at work (forget creative endeavors lately… that’s a hoot). I worry about him ceaselessly, and it doesn’t help that mainstream media has a way of playing to those fears with their portrayal of high functioning autistic kids. Even though the last week has been a triumph, it’s also been at the long tail of a rather frenzied few years. And really, there isn’t much of an end in sight.
Liam at the bookstore in Little Switzerland, NC we visited. Totally posing, and kind of muddy. But he thought this was the coolest place ever.
A brief update, day 3. We’ve got more to say (including thoughts about our mountain mining adventure), but busy lives as they are…
It was a trying weekend here. The kids got sick one after another and, as has been the case since he was the tiniest of creatures, Liam doesn’t deal with being sick very well. Since we got back from Quebec he’s been having trouble sleeping–more than usual–including waking up at 4am, then 5am, then 6am… sleeping on his bed, our bed, the top bunk, the floor. 4am breakdowns are a league of their own.
I’ve had this question posed, and really, there’s one short answer—and a much longer one. The short answer is that Liam’s challenges have accelerated faster than we can cope with in a public school environment, and we don’t believe it’s beneficial for him—or for the school system—to continue.
The long answer?